Sorry I haven’t posted in a few days. Things got kind of hectic and I had a bunch of doctor visits with a visit to RWJ. Now that things have settled down I can finally post. Things are going excellent in the fundraiser aspect. I am up to $3,895.00. I am in shock. I can’t believe this many people cared. I received my confirmation e-mail for my trip. I haven’t been able to pay for the flight or hotel yet because I am still waiting on funds, and probably won’t be able to do that for another week and a half. Prices are still pretty low so I am hoping they won’t change much. I finally sad the profile on my doctor, and he seems to have had quite the career. I m really hopeful that he will be able to cure me. Now back to the fundraising. My friend Deanna is doing such an amazing job. I don’t know what I would do without her. She’s been devoting so much time and effort, and getting so many people involved.. She’s my angel, and I don’t know how I will be able to repay her. She even organized a fundraiser for me May 4th with the help from my friend Amanda. I still can’t believe how many people are coming together to support me. Its like a dream. I never knew this many people cared. Now I am determined to get better so I don’t let anyone down! I really am truly blessed.

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wow.

I just checked my donation page and saw that I am up to 800 dollars. I am in complete shock and disbelief. I even started crying, especially when I thought about a lot of people must really care about me. Throughout this whole ordeal I have been trying my best to stay positive. It gets really hard, sometimes I get sad and cry because I don’t know what my future holds, other times I get angry because  I don’t understand why this happened to me or what did I do wrong to deserve this. I just get so frustrated and I feel so alone at times. The fact that so many people, some I don’t even know are donating to help me get better… I can’t even begin to put into words how grateful I am. So many people are reaching out to me, giving me really helpful information, sending me links to other programs that may be able to help me… Just a lot of support. It really does mean the world to me. I would never wish this upon anyone, it will probably be the hardest thing (I hope) I ever have to go through. I am still in shock as to how many people have reached out to help me. You guys are making me stronger, and I really do feel as if I am no longer fighting this alone. I have put my faith in God to get me through this, and having everyone there for me… I can’t express my gratitude enough. I am no longer  fighting to get better just for me now. I am fighting of my family, my friends, and everyone who has supported me along the way. I haven’t figured out a way to thank everyone properly, because I feel that a simple thank you isn’t good enough for you guys. I have also decided that since so many people are helping me I am going to help others too. If it comes down to me loosing my hair, before it happens I am going to cut it all off myself and donate it to locks of love. It’s the least I can do to pass on the help I am receiving. I don’t have money to donate, my blood is useless so I can’t even do that, but I will figure something out. I want everyone that is reading this and helping me get through this awful and difficult period in my life that I love you, and I would never have been able to even try to fight this on my own. You guys may be the reason I make it through this, and there is no amount of money in the world that could replace what you have all done for me so far. I will pray for all of you in hopes that this never has to be something you go through, and if this does happen to someone I know, God willing  I will be able to be there of you the way you were there for me.

 

The ball is rolling…

I just got an e-mail from MD Anderson Cancer Center, and I have been assigned a patient access specialist. A patient access specialist is the person who coordinates my trip, makes sure I have all my paperwork in order, and that the doctors have all the information they need. Th good thing is I might not need to spend my entire visit in the hospital. I may get a few chances to stay in a hotel, and I guess since people travel to there a lot to get help the hospital worked out some deals with the local hotels and I will get a discount on my hotel stay. The hospital looks huge, and I’ve been to NIH before and I thought that place was big…. but this place seems like it may be bigger. I can’t wait to go there. I am feeling very confident in this. I think the doctors there are very knowledgeable and seem to have a genuine interest in their work as well as making people better. Well..  fingers crossed for now!

Hello All!

Hello. This is my first blog. I am going to update it regularly to keep everyone in the loop with how my progress is going and how I am feeling. So far I have no news to update. I still feel the same, but now that my prednisone does is at 10mg, I am starting to see some of the weight I gained while on it, go away. Currently it is 3:30 in the morning and I can’t sleep because the pain in my legs is so bad it’s keeping me awake. I am holding off on taking any pain meds, because they totally knock me out the next day, and I have a lot of phone calls to make. I am really optimistic about going to the University of Texas M.D. Anderson Cancer Center in Houston, TX. I just hope I can raise enough money to go. I’m trying not to get my hopes up too much, but I feel that they might be able to help me. At this point I’ll do anything to get better. I have a great support system behind me. I am a little nervous about going away so far and probably alone, but I can handle it. You can donate at http://www.giveforward.com/acureforashley . Thank you so much and God bless!